Articles

And my data… are they protected?

And my data… are they protected?

We have been talking about the importance of data in medicine. The age of digitalization and easy access to new technologies by all has promoted that huge amounts of data circulate through shared networks and own systems.

We have also pointed out the crucial importance of the state of these data: standardization, quality, accessibility. With this, using systems that analyze this information and learn from it, we can draw new relevant conclusions regarding health, which is undoubtedly a benefit for medicine in general, and in particular for the patient. […]

Let doctors make Medicine

Let doctors make Medicine

We have a distorted perception of medicine.  The news we see in the media in most cases are of great medical progress.  A new treatment for cancer, a new method for a transplant, a drug that can cure hepatitis, a robot that operates at a distance, etc.  That has caused us to have the false conviction that Medicine can work miracles.  Without a doubt it can, and the great advances that have taken place in medicine in the last two centuries are unquestionable.  But it is also true that most of the medical acts performed in the world are done simply with the clinical judgment of the doctor, with no other help than his experience, his training and his intuition.
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Let’s use the data well to make better Medicine

Let’s use the data well to make better Medicine

Medicine is living deep changes that are doing that in a short time we will stop doing things the way we have been doing for many, many years.

This dizzying transformation -which some do not see and which others are not entirely aware of- is based on the unprecedented ability to obtain and process huge amounts of data from very diverse origins. These data conveniently treated are helping health professionals in the diagnosis and treatment of diseases.

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When describing a symptom is not so easy

When describing a symptom is not so easy

Headache, fever… it is easy to determine many symptoms when you see things clear but with the symptoms associated with behavior is no longer so easy. A mother saying that her son does not speak, a father asking for his daughter who has “manias”… it is not so easy for most people to define aphasia or stereotypes. It is not so easy to make deterministic what for many is not.

The challenge? Overcome barriers like this. A fundamental step is to hand on a plate to get a correct phenotyping to all the world.

Three weeks of work

Three weeks of work

In these three weeks we have noticed the enormous difficulty posed by phenotyping (annotate the symptoms). Our idea to come to INGEMM was to facilitate that process to the patients but we have found that the process is just as complicated for clinicians. […]

The passage of time

The passage of time

Since some of the instruments were used from this showcase have already passed some Years. It seems a lie that in our childhood, which has not been so long, the syringes were sterilized between each use, or have your knees painted of that red substance, which many recognize in the picture, and that carried mercury among its components. […]

Second week same hope

Second week same hope

We continue with the second week and the same objective, a unique project that can do better and facilitate the lives of many people. We continue taking advantage of the month of July to be and work together, with a frenetic rhythm of news, meetings and debates, no one is going to stop us. And with the Hackathon running the best is yet to come. […]

Value the life

Value the life

Many times, we do not value what we have, the greatest thing life is. Most of the time you don’t realize until a family member, friend, or anyone close to you tells you that have a certain illness, that is when we become aware, and you see life differently. If that’s hard, it’s still more if you don’t have a diagnosis, and many times time runs very fast against you.  […]

Enjoy the silence

Enjoy the silence

Enjoy the Silence. This is the song we started the day with. There has really been no silence at all, we have had a lot of teamwork, meetings with experts from CIBER and INGEMM, conversations with revolutionary ideas that can change the way that patients and health professionals contribute to advance in the Diagnosis… We’re going to make a lot of noise. […]

The Julian lessons

The Julian lessons

When @Julianig explains the pathogenic genetic mutations and how they affect or can affect so that they produce serious illnesses… with a napkin.

The long wait for the diagnosis

The long wait for the diagnosis

How long can you wait until your child, your brother or yourself are diagnosed with a disease? Maybe, if you have a flu, go out with an acetaminophen recipe and the recommendation to drink a lot of water is something immediate, but when the diseases are more complex, more unknown or uncommon the waits are agonizing longer. And not only the waits: The doctors visited, the diagnoses, the hospitals, the links of Google visited… multiply as much as the anguish that grows in the affected ones. […]

Intense days and a lot of debate

Intense days and a lot of debate

Second day of work between the office of Microsoft and Hospital de la Paz in Madrid. Today we have had the pleasure of meeting one of the leading companies in the world of rare diseases, Shire. We have discussed the different approaches to diagnosis and how to combine efforts to facilitate this option to the whole world. We have presented the idea of the Global Commission who are leading with Eurordis and Microsoft in order to define the famous “Patient Journey” from which the whole world is talking about.  […]

Diagnosis for everyone

Diagnosis for everyone

Sergio began to have seizures with just two months, they were very subtle seizures that we were unnoticed. But when he was almost four months old he had his first seizure. One of the many he had. The period we live in from these seizures started until we had a diagnosis of Dravet’s syndrome, it was the worst of our lives. By giving him an incorrect medication, Sergio had so many seizures a day that we stopped counting them. There were days he could have dozens. […]

30 days, 10 patients, 1 goal.

Challenge: diagnosis

Come join us this July on Challenge: Diagnosis at INGEMM - Hospital Universitario La Paz.

A multidisciplinary team of volunteers will work together for 30 days with one challenging and meaningful goal: to diagnose 10 patients suffering from a rare disease through an AI solution.

Help us this summer. Work, learn and share a unique experience on a project with real impact on the lives of people.

When

From the 2nd to the 31st of July.
Anytime between 09:00 until 18:00h.

Who

Doctors, developers, data scientists, AI experts, patients, health managers, rare disease specialists…

How

(+34) 687 557 212
info@f29-test.azurewebsites.net

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