Posts in Uncategorized

Article on Julian Isla, president of F29, in El País

August 23rd, 2019 Posted by Uncategorized 0 thoughts on “Article on Julian Isla, president of F29, in El País”

On August 12th Foundation29 achieves a lot of public visibility by the article in Digital El País dedicated to the personal and professional journey of our President Julián Isla and the role the Foundation is playing in the precision diagnosis. Throughout the article the personal motivation is reported in detail.” A software engineer designs a platform to expedite the diagnosis of rare diseases and help other parents not go through what happened to him, until his son was properly diagnosed.” It also talks about the technological foundations of Dx29 and it is announced that it is “open to be tested in beta mode” and that “several Spanish institutions, including the La Paz Hospital in Madrid, have used it with patients already diagnosed and has shown an effectiveness of 80% “and that “we are preparing clinical trials with 600 patients in hospitals of the British NHS and public health in Madrid, the Basque Country and Catalonia”.
From the Foundation we are confident that the wide and transparent communication of our objectives will very positively lead to “a more accurate tool” always with the collaboration of patients with diagnosis and obtaining sufficient funding for the projects. Congratulations!!

You can read the whole article here.

Rare Diseases

June 27th, 2019 Posted by Uncategorized 0 thoughts on “Rare Diseases”

Rare diseases are also known as minority, low-prevalence and other terms that ultimately include a considerable population group and a heterogeneous and wide number of pathologies, which despite being so,  they do share a number of characteristics derived from their low prevalence.

There are between 6,000 and 8,000 rare diseases, which in Spain alone affect more than 3 million people. Only about 500 of these rare diseases have an approved treatment. This means that patients that suffer from any of them are not properly cared for, situation is even worse when 75% of people affected by rare diseases are children, which has a devastating effect on their hope and quality of life. (more…)

Serendipity and the Foundation29 Annual Meeting in June 2019.

June 26th, 2019 Posted by Uncategorized 0 thoughts on “Serendipity and the Foundation29 Annual Meeting in June 2019.”

Serendipity is defined as the fact of finding interesting and valuable things by chance.

On June 7th Foundation29 brought together its patronage, developers and volunteers at LinkedIn offices in Madrid and we could see the reasons why F29 is not serendipity. Foundation29 with Health29 and Dx29 is the luck of some people finding and creating interesting and valuable things but is neither by chance nor fortuitous. (more…)

And my data… are they protected?

June 1st, 2019 Posted by Uncategorized 0 thoughts on “And my data… are they protected?”

We have been talking about the importance of data in medicine. The age of digitalization and easy access to new technologies by all has promoted that huge amounts of data circulate through shared networks and own systems.

We have also pointed out the crucial importance of the state of these data: standardization, quality, accessibility. With this, using systems that analyze this information and learn from it, we can draw new relevant conclusions regarding health, which is undoubtedly a benefit for medicine in general, and in particular for the patient. (more…)

Let doctors make Medicine

May 14th, 2019 Posted by Uncategorized 0 thoughts on “Let doctors make Medicine”

We have a distorted perception of medicine.  The news we see in the media in most cases are of great medical progress.  A new treatment for cancer, a new method for a transplant, a drug that can cure hepatitis, a robot that operates at a distance, etc.  That has caused us to have the false conviction that Medicine can work miracles.  Without a doubt it can, and the great advances that have taken place in medicine in the last two centuries are unquestionable.  But it is also true that most of the medical acts performed in the world are done simply with the clinical judgment of the doctor, with no other help than his experience, his training and his intuition.

Let’s use the data well to make better Medicine

April 26th, 2019 Posted by Uncategorized 0 thoughts on “Let’s use the data well to make better Medicine”

Medicine is living deep changes that are doing that in a short time we will stop doing things the way we have been doing for many, many years.

This dizzying transformation -which some do not see and which others are not entirely aware of- is based on the unprecedented ability to obtain and process huge amounts of data from very diverse origins. These data conveniently treated are helping health professionals in the diagnosis and treatment of diseases.


When describing a symptom is not so easy

July 25th, 2018 Posted by Uncategorized 0 thoughts on “When describing a symptom is not so easy”

Headache, fever… it is easy to determine many symptoms when you see things clear but with the symptoms associated with behavior is no longer so easy. A mother saying that her son does not speak, a father asking for his daughter who has “manias”… it is not so easy for most people to define aphasia or stereotypes. It is not so easy to make deterministic what for many is not.

The challenge? Overcome barriers like this. A fundamental step is to hand on a plate to get a correct phenotyping to all the world.

Three weeks of work

July 24th, 2018 Posted by Uncategorized 0 thoughts on “Three weeks of work”

In these three weeks we have noticed the enormous difficulty posed by phenotyping (annotate the symptoms). Our idea to come to INGEMM was to facilitate that process to the patients but we have found that the process is just as complicated for clinicians. (more…)

The passage of time

July 18th, 2018 Posted by Uncategorized 0 thoughts on “The passage of time”

Since some of the instruments were used from this showcase have already passed some Years. It seems a lie that in our childhood, which has not been so long, the syringes were sterilized between each use, or have your knees painted of that red substance, which many recognize in the picture, and that carried mercury among its components. (more…)

Second week same hope

July 11th, 2018 Posted by Uncategorized 0 thoughts on “Second week same hope”

We continue with the second week and the same objective, a unique project that can do better and facilitate the lives of many people. We continue taking advantage of the month of July to be and work together, with a frenetic rhythm of news, meetings and debates, no one is going to stop us. And with the Hackathon running the best is yet to come. (more…)

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