Posts in Uncategorized

And my data… are they protected?

June 1st, 2019 Posted by Uncategorized 0 thoughts on “And my data… are they protected?”

We have been talking about the importance of data in medicine. The age of digitalization and easy access to new technologies by all has promoted that huge amounts of data circulate through shared networks and own systems.

We have also pointed out the crucial importance of the state of these data: standardization, quality, accessibility. With this, using systems that analyze this information and learn from it, we can draw new relevant conclusions regarding health, which is undoubtedly a benefit for medicine in general, and in particular for the patient. (more…)

Let doctors make Medicine

May 14th, 2019 Posted by Uncategorized 0 thoughts on “Let doctors make Medicine”

We have a distorted perception of medicine.  The news we see in the media in most cases are of great medical progress.  A new treatment for cancer, a new method for a transplant, a drug that can cure hepatitis, a robot that operates at a distance, etc.  That has caused us to have the false conviction that Medicine can work miracles.  Without a doubt it can, and the great advances that have taken place in medicine in the last two centuries are unquestionable.  But it is also true that most of the medical acts performed in the world are done simply with the clinical judgment of the doctor, with no other help than his experience, his training and his intuition.
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Let’s use the data well to make better Medicine

April 26th, 2019 Posted by Uncategorized 0 thoughts on “Let’s use the data well to make better Medicine”

Medicine is living deep changes that are doing that in a short time we will stop doing things the way we have been doing for many, many years.

This dizzying transformation -which some do not see and which others are not entirely aware of- is based on the unprecedented ability to obtain and process huge amounts of data from very diverse origins. These data conveniently treated are helping health professionals in the diagnosis and treatment of diseases.

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When describing a symptom is not so easy

July 25th, 2018 Posted by Uncategorized 0 thoughts on “When describing a symptom is not so easy”

Headache, fever… it is easy to determine many symptoms when you see things clear but with the symptoms associated with behavior is no longer so easy. A mother saying that her son does not speak, a father asking for his daughter who has “manias”… it is not so easy for most people to define aphasia or stereotypes. It is not so easy to make deterministic what for many is not.

The challenge? Overcome barriers like this. A fundamental step is to hand on a plate to get a correct phenotyping to all the world.

Three weeks of work

July 24th, 2018 Posted by Uncategorized 0 thoughts on “Three weeks of work”

In these three weeks we have noticed the enormous difficulty posed by phenotyping (annotate the symptoms). Our idea to come to INGEMM was to facilitate that process to the patients but we have found that the process is just as complicated for clinicians. (more…)

The passage of time

July 18th, 2018 Posted by Uncategorized 0 thoughts on “The passage of time”

Since some of the instruments were used from this showcase have already passed some Years. It seems a lie that in our childhood, which has not been so long, the syringes were sterilized between each use, or have your knees painted of that red substance, which many recognize in the picture, and that carried mercury among its components. (more…)

Second week same hope

July 11th, 2018 Posted by Uncategorized 0 thoughts on “Second week same hope”

We continue with the second week and the same objective, a unique project that can do better and facilitate the lives of many people. We continue taking advantage of the month of July to be and work together, with a frenetic rhythm of news, meetings and debates, no one is going to stop us. And with the Hackathon running the best is yet to come. (more…)

Value the life

July 10th, 2018 Posted by Uncategorized 0 thoughts on “Value the life”

Many times, we do not value what we have, the greatest thing life is. Most of the time you don’t realize until a family member, friend, or anyone close to you tells you that have a certain illness, that is when we become aware, and you see life differently. If that’s hard, it’s still more if you don’t have a diagnosis, and many times time runs very fast against you.  (more…)

Enjoy the silence

July 9th, 2018 Posted by Uncategorized 0 thoughts on “Enjoy the silence”

Enjoy the Silence. This is the song we started the day with. There has really been no silence at all, we have had a lot of teamwork, meetings with experts from CIBER and INGEMM, conversations with revolutionary ideas that can change the way that patients and health professionals contribute to advance in the Diagnosis… We’re going to make a lot of noise. (more…)

The Julian lessons

July 5th, 2018 Posted by Uncategorized 0 thoughts on “The Julian lessons”

When @Julianig explains the pathogenic genetic mutations and how they affect or can affect so that they produce serious illnesses… with a napkin.

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